A Family’s Journey with the Personal Health Record
A patient and family advocate with years of lived experience, Lisa Danielpour is an expert in optimizing the personal health record for patients and providers alike. In this episode, she discusses her family’s story, how accessing information through patient portals changed the direction of her son’s care journey and how healthcare providers can save time sharing records with patients. Recorded at HIMSS 2019.
Resources in episode:
Open Notes “Putting everyone on the same page” Beryl Institute Improving Patient Experience PFCC Partners Patient and Family Centered Care Lisa Danielpour’s Speaking and Advocacy Gooseling, Lisa’s site for families dealing with special needs or chronic illness